LTF Gets Signatures in Oshkosh

This week, the staff and interns of LTF is asking for signatures in Oshkosh that will be sent to the politicians on capitol hill to keep funding NF research. Interns are finding support among Oshkosh residents. We raising awareness by interacting with students and informing them about the importance of the continued research by the Department of Defense (DOD) for people with NF. With every last signature on the letter, Oshkosh students are letting us know that "tumors in children, we do not like them." So far we have over 900 letters of support of NF research that we'll send to our senators and congress people! You + me = a cure!

DC Advocacy!

This week Tracy and Lilla are in Washington D.C lobbying for the NF cause. We want Washington to know about the issue of NF and its affects on and families. Both in the Fox Valley and worldwide, we at the Littlest Tumor Foundation will be advocating for the continued NF research by the government.

In the meantime, interns back in Appleton are working around the clock planning for upcoming events at the Foundation. Don’t forget on February 23, 2012, we will be holding our ski-a-little benefit and talking circle at the Bubolz Nature Reserve here in Appleton. In addition, we are preparing for the crossover from our old website to our new website. Stay tuned for more updates!

Little Does Big Planning

We’ve had so much going on at LTF this month that we haven’t had a second to blog about what we have been doing. So far, been planning A Little Gala at the Copper Rock in Appleton, to unveil our new website and have a little fun doing so! Here’s a sneak peek at what will be happening at the gala.

During the event we will feature families speaking about NF and how it has affected their life, a silent auction featuring getaways and health packages, and a raffle giving away a signed Green Bay Packer jersey. We are excited to also be launching our new website live at the Gala along with unveiling our newest project:  Project NF, an interactive display of what it is like for a child to experience life with NF.

At the event, drinks and "little bites" are provided.  

Here at the office, we’ve been fine-tuning our events for the upcoming 2013 year – we’re even talking about our sam-i-am on Memorial Day weekend! Wow how the year is going by so quickly. In January, we will be holding our winter Talking Circle at the Bubolz Nature Preserve in Appleton and the same day, we will host Ski-a-Little a ski benefit also held at the nature preserve.  We’ll keep you updated on everything as it unfolds.

The Affordable Care Act: An NF Perspective

Affordable Care Act: An NF Perspective

On June 28, 2012, the United States Supreme Court upheld the constitutionality of the Affordable Care Act (ACA), originally the vote was tied, but Hon. John Roberts cast the deciding vote in favor of the act. Now many Americans will be able to have access to affordable care. For example, young people up to the age of 26 are able to stay on their parents’ health insurance coverage.Click here to read more!