Showing posts with label Neurofibromatosis. Show all posts
Showing posts with label Neurofibromatosis. Show all posts

Tuesday, March 19, 2013

Follow Wellness at our new Blog!

Hello subscribers!

We are now moving our content over to our new blog found at littlesttumorfoundation.org/blog/. There you will find more on wellness, recipes, interviews and of course, more info on us, Littlest Tumor Foundation!
Thanks for the years of reading and thoughtful insights. See you at the new blog!


Tuesday, October 9, 2012

Back to School and NF Kids




With the new school year well underway, many kids are excited to go back. At the same time, some NF kids may face some social and behavioral issues. Let's revisit our interview with the University of Wisconsin-Milwaukee Psychology Department's Kelly Janke, M.S., to learn more about learning issues and NF children.


1. Discuss some of the learning issues that you have seen with NF children in school.
Children with NF-1 are more likely to have learning difficulties than their siblings or same-age classmates who do not have NF-1. The rates of learning disabilities range from 30%-65%. Difficulties have been seen in all academic areas including word decoding (sounding out words), reading comprehension, math calculation, math problem solving, and spelling. We really see a lot of variability in the learning profiles of children with NF1.
2. I understand you’re doing a study on NF kids and their siblings, could you discuss that a bit further?
For our study, we recruit children with NF-1 and their siblings between the ages of three and six, and plan to follow them annually up until the age of 10 if possible. The goal of the study is to examine the cognitive and behavioral characteristics of NF-1 in young children to determine if we can see early signs of learning and attention problems. We are also hoping to learn more about the development of cognitive skills over time, and determine if this development differs from their siblings or other typically developing children.
3. What are some of the preliminary results you are finding?
We have found that learning and attention problems can in fact be identified in the preschool age range. There is no clear pattern to these difficulties. For example, some children have difficulty with verbal tasks (e.g., naming pictures, following directions), but do well on spatial tasks such as building with blocks. For other children, the opposite pattern is seen. Regardless of the pattern, most children with NF-1 have some difficulty in at least one area, although it may be mild. It is important that these difficulties can be identified at this young age because that allows interventions to be put in place earlier and prevents more pronounced learning and attention problems. 



Tuesday, September 18, 2012

Little 's big Welcome to Kim!




This week we welcome Kim, our new social work intern. She has been here for two weeks so far and loving it. She hails from Clintonville, Wis. and is currently studying in UW-Green Bay. Let’s learn a little more about Kim.

Hi NF community, I would like to introduce myself to everyone.  My name is Kim Burton and I am the newest intern at Littlest Tumor Foundation.  I am currently a student at UW-Green Bay working toward my masters degree in social work.  I grew up in the fox valley area and am happy to be back in the vicinity.  I left the area for about 10 years while I earned my bachelor's degree in biology from the College of St. Scholastica in Duluth, Minn.  Then I traveled to Nevada to volunteer with the Americorps. Later, I returned to Madison, Wis. after completing my assignment there and had been working hard to make a difference in that community.  I am excited to be back in the area and look forward to working with the LTF and learning and expanding my knowledge over the course of the next year.  

Wednesday, August 8, 2012

A Little Kindness



A smile. A warm greeting card, picking up trash, holding doors open  for strangers, or even a simple message to a long-lost friend and so much more!  We've been up to lots of great things for everyone  by showing a little kindness! As part of our $12 membership campaign, where we invite 3,000 people to join LTF, we are also doing 3,000 random acts of kindness. Some are simple like a smile to being very heart-warming such as writing and sending greeting cards to people assisted-living facilities. With a simple act of kindness a person’s day is might be made brighter. Look for LTF interns and staff doing little acts of kindness near you!
 

Tuesday, July 24, 2012

The Affordable Care Act: An NF Perspective






Affordable Care Act: An NF Perspective

On June 28, 2012, the United States Supreme Court upheld the constitutionality of the Affordable Care Act (ACA), originally the vote was tied, but Hon. John Roberts cast the deciding vote in favor of the act. Now many Americans will be able to have access to affordable care. For example, young people up to the age of 26 are able to stay on their parents’ health insurance coverage.Click here to read more!

Tuesday, July 10, 2012

Little Launches a New Website


There is a lot of new stuff happening at the Littlest Tumor Foundation! We are going to be re-launching our website in August. In order to celebrate, we would like to invite everyone to submit a launch picture of their own. Send us a picture or post it on our event page on Facebook and the day that we launch we will pick a winner. The best launch will win. We would love for everyone to participate! So get creative, have fun and show us how you launch!

Friday, July 6, 2012

NF and Families


The Fight Against Neurofibromatosis
Tumor growth in children affects families, too

 
Health and nutrition play an important part in family wellness for children with health issues and their families. Both chronic and catastrophic health issues in children really have an impact on entire family units.
Neurofibromatosis (NF), a little-known disorder that begins in children with uncontrollable tumor growth in their bodies – such as in the brain and spine – as well as a series of other significant health issues, can create stress for children with the disorder and their families. First hearing the diagnosis of NF creates emotional strain for everyone involved.
Currently, there is no known cure or effective treatment for NF. The unpredictability of the tumors returning, even after surgery, can send children and their families on emotional rollercoaster rides.  The financial strain for medical expenses, such as chemotherapy treatments, surgeries, scans and procedures, can also take a toll.
One way for families to alleviate some of that stress over emotional and financial matters and to better focus on ways to balance the NF health crisis and to build wellness, are through family wellness retreats. These experiences are wonderful ways to provide families with opportunities to learn, educate and promote family wellness.
Family wellness retreats for parents of children with NF might include nutritional therapy, yoga, relaxation, doctor question and answer periods, group support building sessions and nature walks. They also provide time for families to strengthen bonds through the difficulties inflicted by NF and the stress of the treatments.
There is a lot of literature that supports that stress reduction and plant-based nutrition can have a positive effect in disease progression.
One technique that can help families reduce the stress from NF and its treatments is yoga. By doing yoga, participants connect with themselves and others around them in a healthy and relaxing manner. When done as a group, yoga can build bonds between NF families and create social networks that can last a lifetime.
By following healthy, plant-based diets at the wellness retreats, families reconnect with nutritious, wholesome foods. Families can easily make these simple recipes together at home after the retreat for very little cost. Despite the perils of childhood disorders and diseases, family wellness retreats are a great way for families to form connections with each other and cherish the time they spend together through healthy and relaxing activities.
Kimberly Klessig is a master of social work intern at the Littlest Tumor Foundation in Appleton, Wisconsin. The Littlest Tumor Foundation is a nonprofit organization with a mission to find a preventive therapy and treatment for tumor growth in children. The organization is dedicated to advocating for and raising research funds for NF, empowering families, and raising awareness. Services offered for NF families include: NF Family Wellness Retreats, NF Quarterly Talking Circles, NF Educational Webinars and a variety of fundraisers. For more information, visit www.littlesttumorfoundation.com.

Wednesday, June 6, 2012

A Little Wrap-up

 Little Looks Back



Though NF month is now over, we held some GREAT events to make 2012 memorable! We really BLEW THE LID OF NF during May 2012 to let the world know about Neurofibromatosis and the great work done by the Littlest Tumor Foundation (LTF)! We kicked off the month with our awesome “Scream” picture letting the world know about Neurofibromatosis. Then we had our 24-hour up and down College Avenue in Appleton. We had some interesting interactions with the bar crowd…

Then we unveiled our insightful Human Health and Services with an insightful interview with Tracy and Sami. There was a great Derby Party here in Appleton to show support of NF research. Throughout May we papered races in the Fox Valley and Green Bay area to make people know more about our sam-i-am race.
We were on multiple news outlets in the Fox Valley area such as on three radio stations and three TV stations to let the world know about NF and our great events! We finally got to close NF month with our famous sam-i-am walk/run tumors I do not like them at Plamann Park. Here are some pictures that we can reminisce about the fun we had. Stay tuned for our next events coming up in June!

Tuesday, June 5, 2012

Little goes on a run and walk for the cure!



Sam-i-am… tumors i do not like them run and walk

On Saturday May 26, 2012 the Littlest Tumor Foundation held the annual sam-i-am tumors i do not like them, run/walk for the cure. The event was held at the scenic Plamann Park located in rural Appleton. There was a fantastic turn out of over 300 people, despite the earlier rainy weather. During the event, we gave out special kids' bags. We kicked off the event with kids' fun runs to begin the race.

Thanks to InstaPrint Plus for making all the yard signs and posters, Apple Creek Orthodontics donated the dental care items in the kids’ bags, Big Apple Bagels donated the tasty bagels, Premium Waters, inc refreshed us with bottled water and the Little Gym. A special thanks to all of our interns and volunteers, as well as those at Plamann Park for letting us hold our event there. You are all so awesome! See you next year!

Wednesday, May 16, 2012

Little's BIG Social Advocacy Effort


Social Advocacy Efforts
By Kimberly Klessig, Masters of Social Work Intern at the Littlest Tumor Foundation

Over the past few months, we at the Littlest Tumor Foundation have been working extremely hard advocating for support through the Federally Funded Neurofibromatosis Research Program. Through this process, it was great to be able to spread awareness at the University of Wisconsin Oshkosh and Green  Bay campus. There, we obtained signatures from students and staff members who showed their support to continue NF funding by sending a letter of support to their legislators. Other people also signed the letter in support of our cause; I reached out to family, co-workers, and classmates.
   Within a few weeks, we obtained 2,822 signatures and after sending letters of support there were four representatives that signed on! Last year, ZERO of the representatives signed and this year HALF of Wisconsin district representatives signed for their support! This was a HUGE accomplishment!
I also talked to campus organizations such as Circle K, Titan Volunteers and the Social Justice Club. All of these groups took interest in either volunteering, being educated about neurofibromatosis and/or agreeing to participate in future advocacy efforts next year for campaigning and outreaching to the larger community.
Other advocacy initiatives included my supervisor going to Washington D.C.  where she spoke with the staffers directly about neurofibromatosis. I contacted the Wisconsin legislative individuals, who signed in support for NF Funding, to have them hold a “tumors in children we do not like them" sign.
Although it took a lot of time and effort I found that…ADVOCACY WORKS!! I will continue to advocate for NF by continuing to educate and present at a variety of organizations, businesses and community. My dream is to someday have helped in making a difference for NF families!





Monday, May 14, 2012

Little Walks for 24 hours


On Friday May 4, 2012, we at the Littlest Tumor Foundation kicked off NF awareness month with our 24-hour walk up and down College Ave. in Appleton, Wis. This year we started at 10 a.m. Friday morning and walked to 10 a.m. Saturday morning. For the course of the walk we held signs that said, “tumors in children we do not like them,” we walked through the nice, sunny May weather all the way to bar time with its abundance of inebriated drinkers and through the rain that started around 2 a.m.!


The Copper Rock provided us with a place to stay for the night as well as great coffee. We even got a ½ page article in the Appleton Post-Crescent. Over the 24-hour walk, 30 people joined us as we raised awareness about NF. Even some onlookers joined us for our cause! We are dedicated to raising awareness about NF and of course, having a little fun to. We want to say THANK YOU to all our walkers and all of the people who gave donations. We want to especially thank the Copper Rock coffee house who donated coffee and a place for walkers to rest between shifts. The walk is just one of the many events that are occurring this month to raise awareness about NF. Stay tuned for more event dates and times! 

Thursday, May 10, 2012

Little Walks for Life


On Saturday April 28, 2012, the Littlest Tumor Foundation was present at the Relay for Life event in the Kolf Center located on the UW-Oshkosh Campus. The event ran from 4 p.m. on Saturday afternoon and went until 4 a.m. on Sunday morning. LTF was there for the WHOLE 12 hours raising awareness about NF and some of our upcoming events. We had a “little” booth where the Relay for Life participants could sign up for the sam-i-am race that is on May 26, 2012. Check back soon for great events in May (NF month)!

Monday, May 7, 2012

Little's Big Thank You and Big Farewell


As I look back at this year’s Kids-on-Chemo Drive, I cannot help but feel overwhelmed with gratitude. The Fox Valley community rallied behind us in a big way! Littlest Tumor Foundation found themselves supported by a complete mix of community members including: fire fighters, neighbors, college students, schools, family, friends, and the list goes on... 
This particular Kids-on-Chemo Drive was a stand-alone event for the first time ever! It was a big task but the LTF crew pulled through with A LOT of help from volunteers, community members and participants.
The stars of the night, the headshavers, did an incredible job collecting pledges. No matter how big or small the amount collected, the donations we received will go to a great cause! I think a little recognition is in order:
Our Sami Cup recipient, raising $2900, was Linda Elliot. This was the second year she shaved her head for this event and we are so happy Linda uses her incredible drive to further our cause.
Other headshavers include Paul Williams, Kevin Martinson, Adam Mohr, Justin Dull, KC Stadler, Ryan Lee, Nick Davidson, Boyd Van Landghen, Zack Akin, and Brent Debenedet. We even had a few people sneak in without giving us their names! That is how eager the community was to help! In addition to headshavers, three lovely ladies donated their hair for Locks of Love: Kali Thompson, Sara Burns, and Megan Mau. 
Another key part of our event was our volunteers. We recruited the most amazing volunteers we could find! We wanted to give a BIG thank you to all those who donated their time and efforts to making this event the great success it was. 
This event also marks the end of my internship with the Littlest Tumor Foundation. What an experience! If I had to pick the most important thing that I am taking away from this experience, it would be this: Everyone wants to be a part of something bigger than themselves, even if it’s in a little way.
I am very thankful that I could be a part of the beginning stages of a foundation surely destined for greatness.

Monday, April 23, 2012

Little Holds a BIG Event Kids-on-Chemo Drive


It’s almost here! Our Kids-on-Chemo Drive is only a few short days away on Friday April 27, 2012 from 6 p.m. to 8 p.m. at the Paper Discovery Center in Appleton, Wis. We at the Littlest Tumor Foundation (LTF) have been working-around-the-clock to create a fun-filled event for everyone! Gather up all your friends and family as we raise awareness about children who live with the affects of chemotherapy due to neurofibromatosis (NF).
We will have fun activities for everyone. There will be games such as bag toss, paper making for all ages, faux tattoos, bubbles and a photo booth for all your pictures. There will also be a scavenger hunt for children as well as a mustache wearing event. Do you have a shout out or a wish to give to the NF community? There will be a wish wall for you to sign your thoughts and wishes.
There will be food and beverages available at our event. Stop by our juicer station to quench your thirst with one of our great recipes. Looking for a way to show your support for NF families?  You can shave your head to show solidarity with kids who have gone on chemo. You can also show your support for NF individuals and their families by getting purple hair extensions done by Aveda salon.
Don’t forget our Animation Launch that will be taking place. We’ll be unveiling our Animation Launch for the entire world to see!  So get all your friends and family members together for a night of fun and a good cause for the Kids-on-Chemo Drive at the Paper Discovery Center in Appleton!

Monday, April 9, 2012

Little's Upcoming April Events


Chirp, chirp, buzz, buzz. Can you here that? It’s spring at the Littlest Tumor Foundation and we are creating lots of “buzz” for our great upcoming activities in the Fox Valley! We have a lot of events going on in the month of April! Mark your calendars for our Kids-on-Chemo drive and our animation launch on April 27 at the Paper Discovery Center here in Appleton from 6 p.m. to 8 p.m.! There will be great activities for families such as paper making, head shaving and so much more. See you there! Also during this month we are planning for some really, really, big events coming up in May 2012- NF month! Stay tuned for more event information.

Wednesday, March 28, 2012

Little Attends an Alliance



On Wednesday March 21, 2012 two members of the Littlest Tumor Foundation attended the Mid-Day Women’s Alliance monthly convention lunch and speaker series held in Appleton, Wis. There, we also had our own booth and told the women from various professions about NF. Our table had leaflets about the Foundation and NF as well as the upcoming Kids-on-Chemo Drive on April 27 at Appleton’s Paper Discovery Center and the Sam-i-Am walk/run in May. Many of the female attendees were mothers themselves and could understand the affect that a health disorder or disease would have on a family. There were even a handful of people who knew what NF was because they had friends or were in the medical field. Not only did we inform others about our Foundation and NF, but we also got to network with other professionals whom we could do a partnership with in the future.

Monday, March 19, 2012

Little Sends Lots of Letters of Support


Since 1996, the Department of Defense’s (DOD) funding of the Neurofibromatosis Research Program (NFRP) has made important contributions helping people not only with NF but it also translates to cardiovascular, learning disabilities, war-related injuries, and other illnesses. The Littlest Tumor Foundation advocates keeping the research for NF ongoing. In order keep the DOD’s funding for the research going, the Littlest Tumor Foundation asked people throughout northeastern Wisconsin and beyond to sign a letter of support letting both the U.S. Congress and Senate that people wanted the research to continue. We went to the University of Wisconsin’s Oshkosh and Green Bay campuses collecting signatures of support and spreading the word about neurofibromatosis to students and others. Many people had not even heard of NF but when they did they were more than eager to sign the letter of support to potentially impact 175 million people. We had even met people who have NF as well!

After collecting the signatures, we sent out letters of support to our congressional representatives from the eight Wisconsin districts. We were able to meet with every congressional office and sentorial aide in both Washington D.C. and Wisconsin. When we got back in the Fox Valley region of Wisconsin, we had face-to-face appointments with Rep. Tom Petri in Fond du Lac, Rep. Reid Ribble and Tony, Senator Ron Johnson’s aide. At the meetings we discussed the importance of the DOD’s NF research and how it would impact millions of people in the US and abroad as well as raising awareness about NF. Since the sending of the letters of support and meetings, Representatives Reid Ribble, District 8, Gwen Moore, District 4, Tammy Baldwin, District 12, and Thomas Petri, District 6, have signed the letter. Thank you all who have taken a little time to sign the letter of support to continue the Neurofibromatosis Research program, our hard work has paid off thanks to you! In the end, we sent out 2,822 letters of support.

Thursday, March 15, 2012

A Little NF Talking Circle


On March 11, 2012, the Littlest Tumor Foundation held its first quarterly “NF Talking Circle” at the Medical College of Wisconsin in Milwaukee, Wis. Present were adults, kids and families that are impacted by NF.

In the circle, people discussed their NF journeys with each other. It is powerful to talk with others who understand your situation. Meanwhile the children did activities such as painting, thank you card writing and game playing. Healthy snacks such as apples, blackberries, pita chips and hummus were provided. Beverages such as coconut water, along with pineapple and orange juice was served. At the conclusion, many of the attendees enjoyed the circle and it was decided by LTF leadership the “ NF Talking Circle” was a success and will be held again in early summer 2012.

Wednesday, February 29, 2012

Interview with Kelly Janke, M.S., researcher of NF children and learning issues


NF not only causes issues in terms of tumors on the body and other medical ills, but also learning issues. Please read the following interview with Department of Psychology's Kelly Janke, M.S., of the University of Wisconsin-Milwaukee to learn more about learning issues and NF children.






1. Discuss some of the learning issues that you have seen with NF children in school.

Children with NF-1 are more likely to have learning difficulties than their siblings or same-age classmates who do not have NF-1. The rates of learning disabilities range from 30%-65%. Difficulties have been seen in all academic areas including word decoding (sounding out words), reading comprehension, math calculation, math problem solving, and spelling. We really see a lot of variability in the learning profiles of children with NF1.

2. I understand you’re doing a study on NF kids and their siblings, could you discuss that a bit further?

For our study, we recruit children with NF-1 and their siblings between the ages of three and six, and plan to follow them annually up until the age of 10 if possible. The goal of the study is to examine the cognitive and behavioral characteristics of NF-1 in young children to determine if we can see early signs of learning and attention problems. We are also hoping to learn more about the development of cognitive skills over time, and determine if this development differs from their siblings or other typically developing children.

3. What are some of the preliminary results you are finding?

We have found that learning and attention problems can in fact be identified in the preschool age range. There is no clear pattern to these difficulties. For example, some children have difficulty with verbal tasks (e.g., naming pictures, following directions), but do well on spatial tasks such as building with blocks. For other children, the opposite pattern is seen. Regardless of the pattern, most children with NF-1 have some difficulty in at least one area, although it may be mild. It is important that these difficulties can be identified at this young age because that allows interventions to be put in place earlier and prevents more pronounced learning and attention problems.

4. Discuss some of the medical drug studies that are being done.

Our research lab is not involved in medical drug studies, but please see http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm for more information.

5. Have you found NF families having issues with the school in regards to learning issues?

The success that families have in getting services needed is variable based on the school system and the severity of difficulties the child has. NF-1 is associated with more mild difficulties compared to some other genetic disorders; however, children may qualify for an Individualized Education Program (IEP) under the Other Health Impairment category. This category is used when children have an identifiable medical condition (like NF-1), and have learning difficulties associated with the condition that require extra support in school. Children with NF-1 who are also diagnosed with ADHD may also qualify for a 504 plan. Generally, a 504 plan is used instead of an IEP when supports in the classroom alone (without additional special education supports like therapies) can help children succeed. Sometimes the learning or attention difficulties seen for children with NF-1 are a bit subtle. Parents may see them clearly, while schools see only mild differences from peers. In those cases, it can be challenging to show the school that the child needs extra supports.

6. Name some ways that parents can help their NF children who may have some learning issues.

Parents can help their children be successful by getting them a comprehensive assessment at an early age. These assessments are used to identify strengths and weaknesses so appropriate interventions can be put in place. This can help families get the services needed at school and direct parents about how to give their children extra practice with academic-related tasks at home. For example, if their children are having difficulty with early learning skills, it will be important for families to spend time playing rhyming games and reading together, and to talk about numbers and math-related concepts in everyday contexts. Parents can also help their children improve their attention and learn strategies to complete tasks by building up the amount of time their child can spend working in a structured setting.

7. Are parents reluctant to tell the teaching staff NF kids may have learning issues, if so why?

Some parents choose to not tell teaching staff about their child's NF-1 diagnosis to ensure that (s)he is not treated differently than other children. However, awareness of the diagnosis and the types of interventions that may help children with NF-1 is necessary if these children are going to get the services needed. We have found that most of the time, parents find it helpful for teachers to know that their child has NF-1.

8. Can NF kids also have attention issues such as ADD or ADHD in addition to any issues with NF, if so how often does this happen?

ADHD with or without hyperactivity is very common in the NF-1 population, with rates ranging from 30-60 %. For some, there are milder attention problems or organizational difficulties that don't reach the level for diagnosis, but nevertheless have some effect on the child's ability to do their best at school.

9. Name some of the behavioral issues that NF kids might have.

Given that attention problems are so common in NF-1, children with a diagnosis of both NF-1 and ADHD may be at risk for social difficulties. It will be important for parents to teach their children socials skills if any difficulties are noticed, and to give their children opportunities to practice these skills in social situations.

10. Explain the psychological issues that NF kids with learning issues have.

It is possible that children with NF-1 may experience anxiety or self-consciousness related to their physical symptoms and learning problems. There is not currently a lot of research looking at how common feelings of anxiety or withdrawal are in children with NF-1.

11. How and in what ways do the NF learning disorder differ and can they be confused for other disorders?

There is not yet enough research looking at whether the learning problems that children with NF-1 experience are very different from the learning problems of other children with learning disabilities but do not have NF-1. Learning problems in NF-1 are currently assessed in the same way that they would be for other children.

12. Explain some ways that NF kids with learning issues are helped. Are there special programs for them to help them succeed?

Children with NF-1 often have fine-motor difficulties and some have language difficulties. Depending on their pattern of strength and weakness, they may benefit from physical, occupational, and/or speech/language therapy services. Participation in extracurricular activities can give them opportunities to practice social skills. It may also be beneficial to attend NF-1 camps or find a local group to provide social support and show children with NF-1 that they are not alone. Local groups can be found at http://www.nfnetwork.org/


Tuesday, February 14, 2012

Whole Food Plant-Based diet challenge results


The seven day whole foods plant-based challenge is over; let’s see how the interns did. Here at LTF, we like to have people to come out of their comfort zones and try something new! They all wrote about their experiences and how they were able to do it. Some of them found the whole foods plant-based challenge easy, while others found it difficult. In the end however, they all felt renewed and more aware of the importance of a healthy diet.

Boyd

As apart of The Littlest Tumor Foundation’s healthy New Year campaign, the interns and I had to go vegan for a week. As a frequent meat eater, I never thought I would be able to go vegan for the seven days. When my week started, the biggest problem I faced was finding food that I would actually enjoy while meeting the vegan standards. After roaming Wal-Mart for a good hour, I finally had a basket full of food and was ready to start my adventure.

The main food that I ate, and did not even realize was vegan, was whole grain spaghetti. Since I frequently work out, spaghetti and other vegetable dishes gave me the carbohydrates and protein I needed to sustain my energy levels. Another difficulty I faced was finding a dish that was vegan when I went out to eat. Two days in, I got extremely hungry and I was not at home to eat the meals I had made. Not knowing what to eat I caved, and ate a meal containing meat. I felt bad afterwards and told myself that I was going to commit to this challenge no matter what. All in all, the seven whole foods plant-based challenge was not as bad as I thought it was going to be. I learned how to cook a few healthy and delicious dishes that I will never forget, and at the end of the week I was feeling pretty good.

Kimberly

Journal diary of Vegan Efforts by Kimberly Klessig

Sunday, January 22nd

I am a Master’s intern for the Littlest Tumor Foundation, and was given a challenge: 7 day plant-based, whole food challenge! I have always been a healthy eater in the past, but was excited to be given this challenge. On the other hand, I was a little uncertain about this specific kind diet. So I began by doing research and was AMAZED to find out what I/we as a society consume on a regular basis. All of the processed food and added ingredients makes our food mixed with all un-natural ingredients. Since today was my first day to start the challenge, I decided first to go do some grocery shopping. I did some research online of recipes and when I went to the store bought a lot of veggies and fruits! My food intake today consisted of a lot of veggies, a veggie burger and a sweet potato.

Saturday, January 28th

I meet up with some friends for supper tonight. I ended up having a veggie burger. Once again I needed to ask the server for special cooking instructions. One of my friends is a vegetarian (she has ever since her senior year in college). She and I discussed her reasons as to why and she expressed her feelings as to “It just makes me feel better, I feel happy and healthy”. Her positivity was inspiring!

Sunday, January 29th

Today was the last day of the challenge. I have learned a lot in this journey to a new diet! I over all was pleasantly surprised to find I had more energy, felt like I was able to find many options to cook and felt full and not overly stuffed like I sometimes would in eating dairy and meat food options. This challenge opened my eyes to a new way of eating and encourages my efforts to continue this healthy way of eating!

Emily

The Beginning of My Vegantales

This past fall I was offered an internship at the Littlest Tumor Foundation (LTF) based out of Appleton, WI. I had never heard of LTF but I was excited nonetheless. Little did I know my boss, Tracy, is a woman on a mission. She has me performing the regular intern tasks such as thank you cards, cleaning up, and printing labels as well as giving me the opportunity to expand my portfolio and resume. What Tracy has also given me, whether intentional or not, is a whole new perspective of the food I eat everyday. Tracy’s son Sami was diagnosed with Neurofibromatosis (NF) a couple years ago. NF is a disease that allows nerve cells in a person’s body to turn into tumors because their tumor suppressor no longer functions correctly. Studies have shown that the growth of these tumors can be halted and even prevented by eating a plant-based diet, also known as vegan.

To educate myself on this disease and vegan lifestyle I was given a few videos to watch: Crazy Sexy Cancer, Forks Over Knives and True Life: I have NF. All of these movies were powerful in their own way but Crazy Sexy Cancer affected me the most. I cried, laughed, cried again, and then felt happy all in a two hour time frame; what I failed to realize at first is that I was also educated. What was I eating every day? Would I really feel better eating a vegan diet? How would those around me react?

One day I decided to answer these burning questions. Monday, December 5, 2011 was the day I started my vegan trial run. I no longer would eat meat, eggs, or dairy products. Basically, anything that comes from an animal is off limits. I would eat veggies, fruit, smoothies packed full of protein and nuts as my diet. I also would take a multivitamin and an iron supplement. The iron supplement is because I am anemic but the multivitamin is to make up for my lack of Vitamin B12. I knew from the beginning that it would be a learning process. I knew that I would mess up, learn about myself and those around me, and test my mental endurance. Here is my story on the transition from a cheese-loving, meat-eating college student to a vegan.

Contrary to what you may think, I am not trying the Vegan lifestyle because of animals. I am not an animal activist; I am doing this for one reason- my health. I will not be a Vegan in every sense of the word- only in my eating habits. Prior to this change, I considered myself a healthy eater. I always got wheat bread, low fat foods, I ate fruits when I could and I gave myself a few “cheat” meals throughout the week. I also exercised like nobody’s business- I run in half marathons and train for them quite vigorously. No matter how “healthy” I was eating, I was still always tired. I would fall asleep studying or feel really awful at random times. I thought it was the life of a normal college student, and maybe it is, but I didn’t like it. I wanted to feel healthier, I wanted to have more energy, and I wanted to control what I was eating. That is why I decided to eat a plant-based diet.

I may not keep this Vegan lifestyle forever or even an extended period of time but I am going to give it a try. The hardest thing for me has been reactions from my family and friends. After telling Tracy, my boss at Littlest Tumor Foundation, that I was trying the Vegan lifestyle she warned me that I would receive some wrath from those around me- she was right. When I first told my boyfriend, Brandon, he didn’t like it one bit. He was worried- worried I wouldn’t eat right, worried I would be unhappy, and worried I would impose it on him. He got plain upset that I was choosing to try Vegan. After a few minutes of banter, we finally came to the conclusion that he wasn’t mad I was going Vegan, he just didn’t understand it. Since I was new (and still am new) I didn’t have all the answers to his questions. What can you eat? What about protein? How can you not eat meat or dairy? Are you getting all the vitamins you need? What about eating out? What about the organic food- that’s expensive right? And the underlying thought- If you expect me to do this, you’re crazy!

My grandmother was also hesitant to the idea when I told her. “That costs way more money,” she said. I knew this would be an issue with a lot of people so I thought long and hard about it. If I have money to spend on jewelry, clothes, hair products, and shoes, I should have the money to invest in my health. What better to sacrifice for than your own physical well-being? I told her yes, Vegan is a more expensive lifestyle but if I am going to invest in something, shouldn’t it be my health?

I know I will be faced with questions and concerns as this comes out to more of my family and friends. I really haven’t told many people, primarily because I don’t want their negativity. Brandon, shortly after our talk, supported my change. He encourages me to keep with it and asks me questions as he is genuinely interested. Not knowing what is in food is something people have become accustomed to- so the fact that I look at labels, ask what is in foods, or opt not to eat something because I don’t know its contents is something totally new to Brandon. I hope that the rest of my family and friends accept this change as well as he has. I guess that is partially why I am writing this blog: to help my family and friends understand, to educate others, and give myself some time for self-reflection.

Cut Preservatives and Preserve Life

The Price of Health in Our Society:

Shopping vegan has completely changed my perspective on the health of society. Every time I go to the store I find myself leaving upset. Why? Well, the selection of vegan foods is very small compared to the non-vegan foods. It is so upsetting to look at cereal and pay up to three times as much for a healthy option. Everything in the organic section is extremely expensive when compared to the regular foods. Also the convenience factor is just not there for vegans. It is possible for me to spend less money on a meal buying vegan but this usually means I have to spend way more time preparing these meals. When I was learning to cook for this new lifestyle, I basically lived in the kitchen as these recipes take time. Of course, they got faster as I learned but they were still much slower than a regular meal. There are very few grab-and-go options for vegans which is a definite struggle in this face-paced world.

This link (click here) shows how much cheaper unhealthy food is compared to healthier options. This is not a vegan comparison but this is the point I am trying to make about how society molds us into buying unhealthy foods.

As you can see, the amount we must spend to buy healthy foods vastly surpasses the amount we spend on unhealthy foods. How can any person, especially in this economy- and with a family- justify spending 2-3 times the amount they could spend. Society is so short-sighted that health is put on the back burner and the amount of money saved is most important. Also, many people can't afford to buy organic foods which forces them to pack their bodies with preservatives. The majority of people feel entitled to cheap foods and products which means that they feel anything “overpriced” is, simply, not worth it. Food venders take advantage of this entitlement and continue to push the limits. They add more and more unhealthy chemicals in order to make products cheaper and, along the way, unhealthier. Someone needs to put their foot down and demand higher standards. I’d say we deserve it.
These “overpriced” foods are what fuel our bodies and give us energy. The amount of preservatives and other chemicals in the cheaper foods is sickening, literally. Think about it, look at our society- the world as a whole is bigger than ever. We are doing less and eating more. We are slow, we are tired and we are, in all honesty, killing ourselves. Disease rates are extremely high, which we try to fix with medications. If we could just go back to the roots of the problem- unhealthy eating- I bet we could fix a lot, not all, but a lot of health problems in people.

Bottom line:
Now I am not here to persuade anyone to take on the Vegan lifestyle. It is a commitment that has to come from your heart- I’m still not 100% there. I just want to make you think about what you are putting in your body. Yes, chips taste great- my personal favorites are Nacho Cheese Doritos- but what do they do for your body? They fill your body with empty calories and little nutrition. Am I saying never eat chips? Absolutely not! I am saying that people need to opt for an apple more times than they do for chips. And the same thinking goes for any other food. I have recently started to read a book called "In Defense of Food" by Michael Pollan. His introduction says it all: "Eat food. Not too much. Mostly plants." Simple, sweet and to the point. He also said that a little meat and dairy products won't kill anyone, but it should be seen as a side dish instead of a main course. It seems so simple, but yet we all struggle so much.

Mardy

Whole Foods Plant-based diet challenge day #1

So today begins the whole foods plant-based diet challenge with the Littlest Tumor Foundation, for which I am an intern. I looked at my fridge and not much was vegan or could be made vegan. Therefore I had to go and buy $55 worth of whole foods plant-based diet. Okay, so it sounds easy, right? Well, seeing that we are based out of Wisconsin, it's not. Dairy is in many things even my much beloved tortilla chips, so this next week is going to be interesting. I don't stand in any opposition to this, other than the fact that I generally don't have time to do my own cooking. I have two internships and a job that I am at, so the time I have to make all these dishes is greatly diminished. I know this week will go well though, because I do actually like to cook. Today I'm eating pasta with mushrooms, green onions, olives, red pepper relish and pico de gallo (of course!).

The only thing that I wasn't happy about was the fact that I had to give up cookies- many of which have either egg or dairy-based products in them.

Whole Foods Plant-based diet challenge Day#5

It's been five days since I've eaten meat last, but last night I had a BIG issue- going out to eat. So the story goes like this, I offered to take two of my friends, Dane and Jordan, to Wal-Mart for their weekly grocery shopping. In the end, we all tried to figure out what we were going to do later. Then someone mentioned that we should eat out after, my other friend and I agreed. Then it came to cross my mind...what about this challenge? I wondered if I would give into temptation and eat something with meat in it, being that I was used to eating meat at a burger joint. Oddly enough, one of my other friends, Jordan, actually had been a vegan and vegetarian in the past but now he had returned to eating meat. Then I asked my other friend, Dane, who works there, if there had been something like a veggie burger at all and he responded there was.
I was delighted. I had did find the veggie burger on the menu and I mentally rejoiced. I didn't know if the dijon mustard was vegan or not; I was too chicken to ask, Then the three of us went on about how Jordan had connections in all parts of Oshkosh. He was also discussed how he had many jobs ranging from paranormal investigator and to being a worker with the forest department. After about 15 minutes later, we got our food. My veggie burger was really good along with the endless steak fries. The steak fries weren't probably a good idea, but they were tasty none-the-less; I drank water instead of soda to make up for the steak fry indulgence. I am glad they had the veggie burger on the menu, that's something McDonald's needs to do. YUM!

As you have seen, the interns had both easy and difficult times trying the whole foods plant-based diet. Yet in the end, they all left with a more developed conscience on both diet and eating. While the blog posts progressed, one can see how the interns began to understand the importance of making healthy choices and the after effects of them. In the end, the interns walked away with a feeling of accomplishment during the whole foods plant-based diet challenge.